Brandon had his first outpatient dialysis this morning. He said he didn’t sleep well last night, but he didn’t seem to be feeling too bad on the way to dialysis. Then he had his follow-up appointment this afternoon with the surgical oncologist. He was told he would need a follow-up scan in 3 months and that he wouldn’t need to enroll in a clinical trial until that point because they had removed all evidence of disease during surgery. He will see a medical oncologist for follow up later this month. His surgeon is taking his case to the review board which includes specialists, oncologists, radiologists, pathologists, and surgical oncologists, and they will recommend a treatment plan for the medical oncologist to follow (which may still include systemic chemo before the follow-up scan). Knowing so many experts will be looking at his case is encouraging because not every patient has this opportunity. Right now, however, the focus is on recovery from the kidney issues. The surgeon agreed that is the first priority, and he still feels that recovery is coming soon.
Brandon didn’t have much time for rest today, and he was pretty worn out this evening. He did say that he was tired, but he was “feeling good.” Then about 10 minutes later, he said he felt like he had hit the “not feeling well” wall. We are holding on to the “feeling good” time though. Having him say he felt good, even if for a short time, makes a HUGE difference!
The next step is dialysis on Friday, if necessary. Positivity and prayers!!!!